In a follow-up to last year’s request for input on updates to its 2003 Data Sharing Policy, the National Institutes of Health (NIH) is soliciting public feedback on a draft policy for data management and sharing activities related to public access and open science. Regarding the necessity of such a policy, the NIH states:
“Validation and progress in biomedical research—the cornerstone of developing new prevention strategies, treatments, and cures—is dependent on access to scientific data. Sharing scientific data helps validate research results, enables researchers to combine data types to strengthen analyses, facilitates reuse of hard to generate data or data from limited sources, and accelerates ideas for future research inquiries. Central to sharing scientific data is the recognized need to make data as available as possible while ensuring that the privacy and autonomy of research participants are respected, and that confidential/proprietary data are appropriately protected.”
The draft policy would apply to all NIH-funded or conducted research resulting in the generation of scientific data and requires: Continue reading